I am beyond upset right now. It is 6:30 in the morning and I just don't have words. Actually...yes I do. We all want the best for our children. We all try to give them what we believe is good for them, to nurture them, to teach them, to love them.
I am having trouble with my son. Emmett is not typical. It is amazing what goes into his therapy and the tiny steps he has to learn to do anything. With Savannah or other typical children, they see and they want to do, and so we help them, and they do. They crawl, they walk, they clap, they talk.
It took emmett until he was over a year old to learn to sit on his own. We take for granted what comes so easy. There are sooo many tiny steps we don't realize. This is not what I am so upset about though.
I don't know these steps. I also need to be taught these things by the therapists so I can help and teach Emmett. It is not just about Emmett learning...it is about us being told things and therefore...doing what is best for our son; to nurture him, to teach him, to love him.
It is very unfortunate when I find that not everything is being done, that could be done to help him.
When we first found out that Emmett had Down Syndrome...we were all over the internet researching as much as we could. It was overwhelming. But I finally did find an awesome board with postive mothers and I stuck to this one as information on the internet is overwhelming.
I came across a post about a mother asking how other kids with Down Syndrome were doing with their suresteps and thier spio vests. Apparently, these are products that are for children with special needs to help in areas such as hypotonia, stability, posture, spasticity, pronation....and basically have been proven to help children with Down Syndrome with thier development.
I am not exaggerating when I say EVERY SINGLE MOTHER i have asked, has told me that thier therapists have recommended it and even some insurances will cover the cost. This is not 10 or 15 mothers. this is, I believe, 52 mothers. 52! And probably even more.
Why hasn't my therapists suggested these. Do they not know?! But shouldn't they? I am not 100% blaming the therapist but isn't this what they went to school for? I found out by accident.
It really hurts to discover that I am not doing everything I could be doing. I'm just so upset. So of course, after seeing this, I started researching again and I am seeing techniques and pictures and videos of others children in thier therapy and again, all mothers have the same information, they didn't find out from the net....their children are recieving these amazing therapy techniques and exercises and NONE of these have been utilized with Emmett.
I am not even sure how I am supposed to approach his therapists about this issue? I am just upset and tired and I'm stuck. I need help....from anyone and hopefully by a parent who has a child with special needs...but I dont' think many people even read my blog.
Sorry for the long post but any advice would be good.
1 comments:
Oh, Emily....I can tell that you are so tired and worn out! My Natalie just turned six and I have never heard of those things either. For your own peace of mind I would give Emmett's therapists a call and just politely tell them what you have heard and see what they have to say about it. It is sometimes easy for us moms to question whether or not we are doing all we can but BELIEVE ME you are doing so much. The little things (and big things) we do all the time for our special needs children become our habits, but greatly influence and inspire those around us for good. Just yesterday I received some great compliments on my relationship with Natalie, when to me it is just how we are together. You are a great mom with infinite love for your little sweethearts. Try and look at this situation as a blessing to potentially improve Emmett's progress. Hang in there. You are definitely not alone. :)
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